People in the Marfan community

Personal blogs of people with Marfan syndrome

• Apparently Nothing (ryan gwillim)
• Barging Down D Nile
• Bookish Jet Jeanette Navia's personal blog
• Correspondiente Boliviano
• Kid Crater
• Maybe the Rainbows are Always There blog of Thomas Schrantz, an ex-Marf (had been diagnosed as Marf, but then the diagnosis was revoked)
• Maya: Musings of a Marfan Mom
• Rockin' E Ranch (Dan Parchman)
• Professional Patient
• Personal Blog: Life and Marfan Syndrome
• Tall Like the Sunflowers

Personal websites of people with Marfan syndrome

• Janis Cortese’s web site
• Alyson Day’s web site
• William A. Ford’s web site
• Laurie Gelb’s web site
• Bob Hobson Quackenclucker
• Jacki & Paul
• Little Jessica Rose
• Jon’s Living with Marfan Syndrome website
• Kathryn’s web site
• Jennie Logsdon Martin’s www.ifish.net Page
• Michelle’s Spot
• William Robert’s web site in memory of his girlfriend, Theresa
• Miriam Shpak’s home page also, Marfan info in Hebrew
• TallRich (Richard Michaels’) home page
• Sally Tomson’s Tomson/Innes Family web site
• Wim Vogelaar’s web page
• Tall Like The Sunflowers: personal page of wife of a Marfan man, mother of a Marfan girl
• Conner's Marfan Syndrome support group. Where kids support kids.

If you or someone you love has Marfan syndrome, and you have a web page on which you mention the Marfan syndrome, add yourself to the list.