Online Marfan communities

Here are some ways to meet other people and families dealing with Marfan syndrome:

• Marfan-List The longest-running e-mail discussion group about Marfan syndrome on the web.
• Marfan Life Forum
• Long Tall Folks’ Journal A Live Journal community.
• Marfans Support and Chat A Yahoo! group. Popular chat site.
• Marfans Support Group A Yahoo! group.
• Massachusetts Marfan Group A Yahoo! group.
• Christians with Marfans A Yahoo! group.
• Living with Marfans An MSN group.
• MySpace: MarFaN SynDrOmE HoTTiEz
• MySpace: Morphin' Marfans
• Marfan Support and Information in New South Wales Includes discussion forum, member list, photo gallery.
• Includes a forum, once you log in.
• Contactgroep Marfan Nederland in Dutch.
• Marfan Francophone A Yahoo! group, in French.
• Yahoo! Group Marfan Syndrome in Singapore
• A community site with forum for Loeys Dietz syndrome