Marfan Syndrome Links

-=General Marfan Syndrome Information=-

• The Importance of Genetic Testing in the Clinical Management of Patients with Marfan Syndrome and Related Disorders. Mine Arslan-Kirchner, Yskert von Kodolitsch, Jörg Schmidtke
• National Marfan Foundation
• Janis Cortese Marfan Syndrome: Life and Issues Surrounding This Genetic Disorder

-=Forums, Support Groups and Discussion Boards=-

• Marfan-List The longest-running e-mail discussion group about Marfan syndrome on the web.
• Marfan Life Forum A bulletin-board forum for discussion about Marfan syndrome.
• Long Tall Folks’ Journal A Live Journal community.
• Marfans Support and Chat A Yahoo! group. Popular chat site.
• Marfans Support Group A Yahoo! group.
• Massachusetts Marfan Group A Yahoo! group.
• Christians with Marfans A Yahoo! group.
• Living with Marfans An MSN group.
• Marfan Support and Information in New South Wales Includes discussion forum, member list, photo gallery.
• Marfan Association, UK Includes a forum, once you log in.
• Mailing List van Marfan.nl in Dutch.
• Contactgroep Marfan Nederland in Dutch.
• Marfan Francophone A Yahoo! group, in French.
• Yahoo! Group Marfan Syndrome in Singapore