Marfan Syndrome Wiki
This is a wiki, which anyone reading this can edit. People in the Marfan community can add their experiences and their knowledge of what it's like to live with the Marfan syndrome.
DISCLAIMER: These pages are created by people who may or may not have any medical training. The editors could be anybody. They may not even have any connection to Marfan whatsoever. Do not take anything as absolute truth. Check with your physician before doing anything crazy.
The Marfan community
Dealing with doctors