Hey everyone, I'm new here, and I joined because I think I might have Marfans, and it has been bothering me recently. I've always been a pretty tall guy, and thin. I used to not think much of it, but I'm 18 and it's been getting at me more and more lately. When I got my last physical, my doctor said that marfans was a possibility, due a possible heart murmur, but he thought nothing of it. Ever since then I've been looking into it more and more, and I realize that there is a possibility. I'm tall and thin and have scoliosis. I've also read that your eyes can be affected, and I am very near sighted, and it has been getting worse over time. However the one thing that bothers me the most is weight. It is constantly brought up in every day conversation and I am very tired of it by now. I usually try not to let things get to me, but it is so repetitive it's ridiculous. I've been trying to exercise a bit lately to help it, but not much has happened. I know that eating more helps too, and I try, however I usually cannot eat as much as a normal person could. I am scheduling an appointment in the near future concerning Marfans.
What I want to know is, what can I all do to try to gain weight? I definitely want to change this anyway I can. I've heard the basics over and over, like exercise, eat more, watch your calories, but none of this has any effect what so ever. Any exercising I do is slow, but for longer periods of time. I wanna know if there is anything else I can do to help gain weight aside from changing the way I eat to exercising.
Any advice is greatly appreciated.
Marfan Life Forum
A place where people living with the Marfan syndrome can talk