I, Jeanette Navia, am not a doctor, nor am I educated or employed in a medical or health care field. Most likely, people replying to questions about health concerns in this forum are not formally educated in the health care field either (although if any health care professionals care to reply, they are certainly welcome!).
Any advice or information you read on this forum should be checked against reality and/or with a health care professional.
The best place to get up-to-date information approved by the physicians on the Medical Advisory Board of the National Marfan Foundation is at the National Marfan Foundation.