A place for parents to sit and enjoy a cup of "java". Parental and social aspects, support ....
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- Marfan Mom with Questions
by suzie on Tue Dec 05, 2006 12:35 pm
- 2 Replies
- 1449 Views
- Last post by MarfMom
on Sat Jan 09, 2010 4:14 pm
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- Dealing with school and marfan syndrome
by happy4 on Wed Oct 22, 2008 9:30 pm
- 6 Replies
- 269 Views
- Last post by Karnagia
on Sat Jan 02, 2010 5:23 pm
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- 10month old daughter with Severe Neonatal Marfans
by JEN_18126 on Fri Jan 02, 2009 10:44 pm
- 2 Replies
- 157 Views
- Last post by Karnagia
on Sat Jan 02, 2010 5:20 pm
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- anyone lose a parent to marfans?
by 12360094 on Wed Apr 18, 2007 6:24 pm
- 7 Replies
- 1970 Views
- Last post by Karnagia
on Sat Jan 02, 2010 5:17 pm
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- Help please. Thanks
by Davo =) on Sun Apr 26, 2009 1:40 am
- 1 Replies
- 192 Views
- Last post by akm3
on Tue May 19, 2009 4:34 pm
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- No diagnosis - watching. What about activities?
by MarshMan on Sun May 03, 2009 10:46 pm
- 0 Replies
- 173 Views
- Last post by MarshMan
on Sun May 03, 2009 10:46 pm
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- Pants for tall skinny boys
by Jsmom on Tue Jul 29, 2008 10:56 am
- 4 Replies
- 291 Views
- Last post by Davo =)
on Sun Apr 26, 2009 1:43 am
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- Advice for 20 month old child
by savmyjo on Sun Dec 28, 2008 11:29 pm
- 7 Replies
- 137 Views
- Last post by Degrassi
on Tue Dec 30, 2008 4:45 am
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- My 9 Month Old Daughter
by sophiesmom on Mon May 07, 2007 2:57 pm
- 13 Replies
- 2844 Views
- Last post by savmyjo
on Sun Dec 28, 2008 10:30 pm
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- I need help from Parents with Marfan kids.....what do you
by cadensmom on Mon Jul 21, 2008 4:40 pm
- 3 Replies
- 279 Views
- Last post by smalltowngirl82
on Mon Aug 25, 2008 9:37 pm
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- Son In The Process Of Being Diagnosis
by warman27 on Mon Jul 21, 2008 9:08 pm
- 7 Replies
- 828 Views
- Last post by polly
on Thu Jul 31, 2008 7:09 am
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- Marfans mum & mums to be
by becks on Sun Jun 15, 2008 5:57 pm
- 2 Replies
- 408 Views
- Last post by Natasha Duggan
on Tue Jun 17, 2008 1:59 pm
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- My son is probable Marfans would really welcome some advice.
by sugbug on Fri May 16, 2008 7:26 pm
- 20 Replies
- 2079 Views
- Last post by tesla77
on Sun Jun 15, 2008 4:13 am
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- Marfan Child with migranes?
by cadensmom on Mon May 05, 2008 12:26 pm
- 5 Replies
- 929 Views
- Last post by common
on Sun May 11, 2008 12:46 am
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- passing marfans on to your kids
by cassie on Tue Apr 22, 2008 8:28 am
- 12 Replies
- 1510 Views
- Last post by Marf
on Mon Apr 28, 2008 5:31 pm
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- Would you let your child with Marfans...
by cadensmom on Tue Mar 11, 2008 12:36 pm
- 11 Replies
- 1522 Views
- Last post by asdf38
on Fri Apr 04, 2008 2:15 am
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- Are there any early symptoms of marfans in kids?
by sualdridge@comcast.net on Sun Feb 24, 2008 11:50 pm
- 10 Replies
- 1385 Views
- Last post by mumofcorey
on Sat Mar 15, 2008 8:08 am
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- Shoes for my daughter
by h2oman on Mon Jan 21, 2008 6:50 pm
- 6 Replies
- 1201 Views
- Last post by Jibrille
on Fri Mar 14, 2008 1:57 pm
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- For parents - new book at www.marfan.org - thoughts?
by Jsmom on Fri Mar 07, 2008 10:45 am
- 1 Replies
- 439 Views
- Last post by lmh2
on Fri Mar 07, 2008 11:27 am
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- 23 y/o w marfans: a note to parents
by realityfusion on Wed Jan 09, 2008 11:32 pm
- 9 Replies
- 1522 Views
- Last post by sophiesmom
on Thu Jan 24, 2008 5:33 pm
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- please help - worried about my son
by evlemp on Wed Jan 16, 2008 1:36 am
- 3 Replies
- 733 Views
- Last post by npp33
on Sat Jan 19, 2008 4:35 pm
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- Son w/ Dilated Aorta, etc.--Could it be Marfan Syndrome?
by francie12 on Sun Jan 06, 2008 6:35 pm
- 4 Replies
- 750 Views
- Last post by francie12
on Tue Jan 08, 2008 2:47 pm
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- Mom in need of advice re possible Marfan
by Merrill on Fri Oct 19, 2007 1:19 am
- 5 Replies
- 884 Views
- Last post by Merrill
on Fri Oct 19, 2007 4:26 pm
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- First steps for my son?
by gopeachy on Mon Oct 01, 2007 12:07 pm
- 4 Replies
- 912 Views
- Last post by Bob
on Tue Oct 02, 2007 9:42 am
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- What about my child's physical activities for school?
by teapartymom on Mon Aug 13, 2007 12:03 pm
- 5 Replies
- 1281 Views
- Last post by Jasmin
on Wed Aug 15, 2007 6:40 pm
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- Went to the geneticist for my son today.....
by cadensmom on Mon Jul 16, 2007 4:33 pm
- 6 Replies
- 1379 Views
- Last post by Melissa
on Fri Jul 20, 2007 7:47 am
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- For my son to have Marfan's genetically either I or my
by cadensmom on Thu Jun 28, 2007 11:00 am
- 5 Replies
- 1168 Views
- Last post by Degrassi
on Fri Jun 29, 2007 2:54 pm
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- What to expect at geneticist appointment for my son?
by cadensmom on Tue Jun 26, 2007 11:55 am
- 2 Replies
- 750 Views
- Last post by Melissa
on Thu Jun 28, 2007 6:54 am
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- Children..
by Leigh on Sun Aug 27, 2006 12:58 am
- 7 Replies
- 2140 Views
- Last post by Melissa
on Sun Nov 12, 2006 9:56 am
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- 17 year old son received positive diagnosis
by thefunnyfarm on Wed Jan 25, 2006 11:35 pm
- 3 Replies
- 1331 Views
- Last post by magdalen13
on Tue Jun 20, 2006 3:24 pm
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- give birth despite a dilated aorta
by lisetheo on Mon Feb 14, 2005 12:19 pm
- 10 Replies
- 2973 Views
- Last post by lisetheo
on Mon Apr 18, 2005 10:17 am
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